BEACON: BEAVRS case collection initiative

Current BEACON Projects

	Title	Project lead	Contact	Project Information	Project Forum Discussion	Project Downloads
SCARCE Study	Scleral Rupture during Cryo-retinopex	Asterios Diafas	asterisdiafas@gmail.com	Information Guide		Dataform
ORIS study	Outcomes of retinal detachment in sickle cell retinopathy	Nikos Dervenis	nikosdervenis@gmail.com	ORIS Guide		ORIS Dataform
LARGO study	Management of large recalcitrant macular holes	Teresa Sandinha, Rob Henderson	sandinha@imapmail.org robert.henderson5@nhs.net	LARGO Guide		LARGO Data Collection SHeet
OPTIMA	The use of “autologous or allogenic plugs” in vitrectomy for the surgical management optic disc pit maculopathy	Mariantonia Ferrara	mariantonia.ferrara@gmail.com	BEACON project OPTIMA	View the forum here	OPTIMA BEACON FormOPTIMA BEACON GuideOPTIMA BEACON Dataset
BEACON_0	Sample BEACON	Sample Proposer name	beavrs@beavrs.org	Sample Project	Sample BEACON Forum
BEACON_1	SHOE Study	Aman Chandra, Michael Mikhail	Contact SHOES	Secondary Macular Hole (SHOE) Study	SHOE Forum	SHOES Guide Download SHOES Data Collection Sheet
BEACON_2	Scalpel Study	Noemi Lois	pmccullough17@qub.ac.uk	Spontaneous clearance of sub-macular perfluorocarbon liquid study	Scalpel Forum	Scalpel Guide Download Scalpel Data Collection Sheet

Create your BEACON Project

BEACON Key Principles:

· To encourage and facilitate large scale collection of rare VR cases/situations/scenarios by BEAVRS members to add insight into aetiology, incidence, management, outcomes and complications/harms.

· Designed to be carried out with only routinely collected and fully anonymised data; no BEAVRS funding will be available for these studies.

· Unlike BOSU, incidence data is not possible on national level as collection is by opt in. However, softer local prevalence/incidence is possible and risk factor analysis would be also possible if control group data is also included and enough number of cases collected.

· Typically, this does not require ethics approval if only a surgeon’s personal cases are collected but local trust policies should be checked and followed (in most Trusts it will need to be approved as an audit).

· Studies to be led, performed and organised by BEAVRS members themselves

· Members create their own ideas – they can advertise for support and assistance in working up their ideas on the BEAVRS forum or by directly approaching other BEAVRS members – then they then submit the idea with relevant documentation and case collection forms (see below) for other members to join in. This should be backed up with a forum post to advertise the study.

· Members are responsible for their own research governance and also for submission of their own cases to the organising study team. BEAVRS will not assist in that process.

· If the study group wish, proposals will be reviewed by the BEAVRS Research group.

· It is envisaged that all contributors to the case collection should be named as authors on papers. Each project will have a management/writing group by agreement amongst themselves.

· We would recommend that the acronym BEAVRS or BEACON should be included in title as a study group ie BEAVRS study group

· Distinguishing features of BEACON to BOSU: Allows retrospective and prospective study design, free to initiate new projects, not national but could potentially be large if enough contributors, not capped by a limit on number of studies, not centrally organised, no identifiers collected and therefore less ethical concerns.